AQW 12910/22-27

Mr Danny Donnelly
Alliance Party
East Antrim

Tabled Date: 04/06/2024
Answered On Date: 25/06/2024
Priority Written: No

Question:
To ask the Minister of Health, pursuant to AQW 11434/22-27, to detail any contingency plans in place (i) to maintain the supply of Risdiplam; and (ii) to support people who otherwise would have been starting Risdiplam.

Answer:

My department has engaged with Health & Social Care Trusts and established an interim contingency arrangement. This will ensure continuity of care for the neuromuscular patient group whilst a long -term solution is being sought. This includes maintaining the supply of Risdiplam for those patients currently accessing this treatment, ensuring those patients can continue to access this specialist medication.

The Health and Social Care Trusts, along with SPPG, will continue to work together to ensure care for those who need it.