AQW 40834/22-27

Mrs Michelle Guy
Alliance Party
Lagan Valley

Tabled Date: 17/02/2026
Answered On Date: 09/03/2026
Priority Written: No

Question:
To ask the Minister of Health to detail the current clinical pathways available for individuals diagnosed with Ehlers-Danlos Syndrome.

Answer:

Elhers-Danlos patients are currently referred by GP to Rheumatology services across the five Health and Social Care Trusts in Northern Ireland for multidisciplinary support for joint issues, physiotherapy and pain management.

There are currently no plans to commission a dedicated specialist clinic for Elhers-Danlos Syndrome in Northern Ireland.